CRMO Foundation

Chronic Recurrent Multifocal Osteomyelitis is an extremely rare, painful, autoinflammatory bone disease that affects 1:1 million children. The mission of the CRMO Foundation is to support and improve the health and well-being of Chronic Recurrent Multifocal Osteomyelitis (CRMO) patients and their families by furthering the efforts of life-changing research, increasing access to resources and education and promoting awareness of the disease.

The CRMO Foundation was created by a group of active and engaged parents of children suffering from CRMO. These parents saw firsthand the needs of their own children and the needs of the CRMO community in general, and they felt compelled to do something to meet those needs. They understood that two of many large obstacles to overcome are the difficulty of diagnosing and the lack of information about this very rare disease.

⇒ Researchers need funding to generate data

⇒ Physicians need research and education to properly diagnose and treat the disease

⇒ Patients and families need a connection to current research and the community

We envision this foundation as a place to bring all of these groups together, ensuring a successful future with an actively engaged research community leading to therapeutic advances and access to information, resulting in better treatments and an overall better quality of life for those living with CRMO. My son, who is a student at College Gardens Elementary School in Rockville, was diagnosed with CRMO three years ago and we would love to get the community involved to help spread awareness about this commonly misdiagnosed disease.

The CRMO Foundation is dedicated to creating accurate educational materials for Chronic Recurrent Multifocal Osteomyelitis patients and families by working with physicians to publish the most up to date information. We also raise money for much needed scientific research through awareness walks and other fundraisers. SSL hours will include educating the public about CRMO and other rare diseases, raising awareness for much needed scientific research, and supporting the CRMO community through fun community events: CRMO Awareness Walk