The Foundation to Fight H-ABC was established in 2015 to help raise awareness, support families, and fund research for a cure for this rare progressive condition that mostly impacts children. We are looking for an energetic individual interested in supporting our fundraising outreach. Given its rareness we continue to have challenges gaining attention, and looking for someone who is not only passionate about helping kids, but also connected within the county to those who might be interested in supporting our work. Responsibilities include creating and managing fundraiser campaigns, engaging donors and sponsors, and helping to strategize and coordinate events (virtual or in person). Grant writing skills would be a great plus!
This role will greatly help us raise awareness and support families living with this condition. The opportunity offers lots of flexibility to match your schedule, and we will recognize your efforts in our newsletter, social media, LinkedIn (if you wish).
Our website is h-abc.org
