The Foundation to Fight H-ABC is a 501(c)(3) created in 2015 to raise awareness, support patients and families, and raise funds for research.
We are looking for someone who has a genetic background who might be interested in helping our organization to advise on research tied to leukodystrophy. H-ABC is a type of leukodystrophy. We are working on a number of projects including AAV gene therapy, ASO, and drug repurposing. Ideal for a retired clinician, scientist or geneticist, someone who has the time and energy with knowledge in this space would be extraordinarily helpful for us as a resource
