The Foundation to Fight H-ABC is seeking a passionate volunteer with strong community, business, philanthropic, or donor connections to help expand awareness and fundraising support for children living with H-ABC (TUBB4A-related leukodystrophy), an ultra-rare neurologic disease.
This volunteer role is ideal for someone who enjoys opening doors, making introductions, building relationships, and helping nonprofit missions grow.
Responsibilities may include:
- Introducing the Foundation to potential donors, sponsors, businesses, or philanthropic contacts
- Helping identify corporate sponsorship or community partnership opportunities
- Supporting fundraising efforts tied to awareness campaigns and special events
- Sharing the Foundation’s mission within personal or professional networks
- Serving as a champion for children and families impacted by rare disease
Ideal candidates may have experience in:
Fundraising, sales, community leadership, nonprofit board service, philanthropy, corporate partnerships, business networking, or social media influence.
Time commitment: Flexible; approximately 2–5 hours per month or project-based.
Why it matters:
Your connections and advocacy can help accelerate awareness, family support, and research efforts for children living with a devastating ultra-rare disease that currently has no cure.
Location: Virtual, with optional support for community initiatives in Montgomery County, Maryland and beyond.
Not approved for SSL
